May Researchers develop biobanking roadmap for future health research in Ireland

Publication sets out actions for Ireland to achieve membership of BBMRI-ERIC – one of Europe’s largest research infrastructures

A research team at University of Galway has led the development of a roadmap which charts the path for Ireland to join the European research infrastructure for biobanking and biomolecular resources.

The new publication, A Roadmap Towards Ireland’s Membership of BBMRI-ERIC, was developed by a multidisciplinary team led by University of Galway on joining the Biobanking and Biomolecular Resources Research Infrastructure - European Research Infrastructure Consortium.

The roadmap reflects a growing national consensus that joining BBMRI-ERIC is essential for advancing health research and delivering long-term benefits for patients and society.

BBMRI-ERIC facilitates access to nearly 500 biobanks across Europe, enabling collaborative, high-impact research. Biobanking enables the collection and storage of biological samples and health data from patients and volunteers for future research. It underpins the development of new diagnostics and treatments for diseases such as cancer, cardiovascular conditions and neurodegenerative disorders.

In September 2024, the BioBANC Symposium III took place at University of Galway, involving stakeholders from academia, healthcare, patient advocacy and industry where strong support was expressed for Ireland to become a BBMRI-ERIC member. The symposium underlined the urgency of integrating biobanking into Ireland’s national healthcare system, to create a sustainable infrastructure for future health research and innovation.

Professor Peter McHugh, Interim President of University of Galway, said: “This roadmap reflects the kind of leadership and collaboration that defines University of Galway’s role in national and European research. I want to thank our colleagues for driving this strategic vision forward - placing Ireland in a position to realise the full potential of biobanking for public good. Securing BBMRI-ERIC membership is a national opportunity. It requires collective commitment across government, healthcare, research and patient communities, and we strongly support a positive outcome for all involved.”

Dr Colm Henry, Chief Clinical Officer of the Health Service Executive, said: "Biobanking is a critical research tool which helps us understand illness and the different ways in which people respond to illness. Collaboration with BBMRI-ERIC will enhance the power of biobanking through collaboration and pooling of knowledge.”

Dr Sonja Khan, Head of Education at the Institute for Clinical Trials at University of Galway, and Programme Director for the MSc Clinical Research at University of Galway said: “As biobanks continue to evolve, they are playing an increasingly critical role in advancing healthcare and addressing some of the world’s most pressing health challenges. This evolution is bringing changes in the relationship between biobanks and the biological samples and data they are entrusted to preserve by patients and participants. The Irish biobanking community is advocating that these changes are best navigated in alignment with our European partners through membership of BBMRI-ERIC.”

Dr Avril Kennan, chief executive of Health Research Charities Ireland, said: “If we are serious about delivering truly patient-centered care, then research must be embedded as a core function of our health and social care system. Patients want to contribute to improvements - not just for themselves, but for others. By building research into routine care, we can turn every patient interaction into an opportunity to learn, to improve, and to innovate. The policy direction is clear; now we need collective commitment across the system to make it happen.”

BBMRI-ERIC is headquartered in Graz, Austria, providing a harmonised framework for data quality, ethical and legal compliance, and responsible access to biological materials -accelerating scientific discovery while ensuring public trust.

The report emphasises that a national biobanking infrastructure will require dedicated infrastructure funding, legislative backing, and stronger public awareness.

Key Recommendations from the Roadmap

• Join BBMRI-ERIC: Position Ireland as a full member of the European biobanking network.
• Integrate biobanking into the health system: Embed biobanking in national healthcare policies to support ongoing research.
• Secure infrastructure funding: Move beyond short-term grants to a sustainable funding model.
• Strengthen public and political understanding: Launch awareness campaigns to enhance trust and transparency.
• Create a national biobanking node: Coordinate efforts and standardise best practices across the country.

A federated and coordinated national approach will be essential, aligning Ireland’s biobanking capabilities with international standards while allowing regional strengths to flourish. The roadmap outlines the need to establish a national node to support integration, governance, and stakeholder collaboration.

Professor Jens K. Habermann, Director General of BBMRI-ERIC, said: “Ireland’s membership will unlock the potential of biobanking and biomolecular resources to inspire the best research for the benefit of patients, the public, and the planet.”

Billy McCann, patient advocate and member of the National Biobanking Working Group, said: “When you’re going through illness, so much is out of your control. But choosing to contribute to a biobank gives that experience meaning. You’re not just giving samples - you’re giving future researchers a key to unlock answers we don’t have yet. It’s a deeply personal decision, but it’s also a powerful act of hope - for yourself, for your family, and for people you’ll never meet. You’re part of something bigger than your own diagnosis.”

The report is available at https://doi.org/10.12688/hrbopenres.14089.1

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